What would every patient want? To know the best, the latest science is being used for them…
— Dame Tessa Jowell
EVERY CHANCE FOR EVERYONE
360,000 new cancer cases in the UK each year.
51% of these patients are, or will become, untreatable*.
Nearly 30% of these newly diagnosed patients will die within a year. With no more treatment options and no hope.
Cutting edge, novel treatments do exist, but they are currently only accessible to those with the privilege of access, support and financial resources.
We believe the best should be available to everyone.
*ACT for Cancer Analysis of CRUK statistics (2016) on survival rates for all cancers in UK
IGNITING OUR MOVEMENT FOR CHANGE
WHY WE ARE UNIQUE
We are the only cancer charity in the UK with the singular focus on delivering personalised treatment and care to ALL cancer patients through the NHS. This means we are uniquely addressing a hugely unmet need.
The UK has one of the lowest cancer survival rates in the Western world, but with the dawn of personalised medicine and all it involves, we have an opportunity to become Global leaders in cancer care, treatment and research. Our founder, Tessa, believed passionately that transformative change can only be achieved through collaboration, and that spirit is at the core of our mission.
We will work with patients, doctors, governments and health systems to deliver this change at scale, starting with brain cancer, as an exemplar for what can be done for other currently ‘untreatable’ cancers across the board.
WE ARE BUILDING A MOVEMENT TO DELIVER THE MOST CUTTING EDGE, ADAPTIVE, PERSONALISED TREATMENTS AND CARE TO ALL UNTREATABLE CANCER PATIENTS THROUGHOUT THE NHS
WHAT WE HAVE ACHIEVED SO FAR
THE TESSA JOWELL BRAIN CANCER MISSION
We’ve instigated the Tessa Jowell Brain Cancer Mission (TJBCM) a highly engaged working consortium which has brought together National leaders in Government, Science, Trials Development, Data Innovation and Patient Charities to radically rethink the way we approach currently ‘untreatable’ cancers like Brain Cancer. ACT for Cancer sit on the executive leadership team of the TJBCM and co-chair the patient experience programme
Tessa’s call to arms was the catalyst behind the Government’s £40m investment to accelerate brain cancer research.
We’ve campaigned for tumour tissue genetic biobanking to be an NHS standard protocol
A NEW GOLD STANDARD
We’ve called for a new gold standard to identify tumours (5-ALA dye)
THE FIRST PERSONALISED ADAPTIVE TRIALS IN THE UK FOR RARE BRAIN CANCER
Developing a national patient advocacy programme for all patients enrolled in ‘Tessa Jowell Brain Matrix’, the first ever personalised adaptive treatment programme for Brain Cancer in the UK at Birmingham University
The launch in summer 2019 of the ‘Tessa Jowell Fellowship Programme’, which will train the brightest new minds in neuro-oncology in the most cutting edge new practices, at centres of excellence in the UK and internationally
‘We can all live well with cancer, not just die from it’– Dame Tessa Jowell
HOW WE WILL DELIVER CHANGE
There are 5 key pillars to ACT for Cancer:
Universal access to new drugs and treatments
Coaching loved ones to become skilled advocates
Training Oncologists in molecular oncology and adaptive treatments
Unite the voices in rare, complex and late-stage cancers to combine learnings in real time
Invest in the technologies required for this to become the minimum standard of care and research
‘The current huge inequality in access to the best treatment and care for patients is an issue of social justice. Patients who can’t access the most cutting edge treatments and care often pay the highest price there is to pay- they die, and quite often because the options available to them are so crushingly limited. We are going to change that. ACT for Cancer has been created to build a movement between patients, doctors and the health system to deliver Mum’s legacy, to make sure that the BEST is available to all patients, not just the privileged few.’ – Jess Mills
MOVEMENT FOR CHANGE
We want to hear from you. Our movement for change will be built for you and by you. We want to hear ‘your’ stories. We want to know how you would like to get involved.
SUPPORTING THE MOVEMENT
We need to raise £1 million to kick start the delivery of Tessa’s legacy and to ensure this momentum for change will continue to build with the support of patients, medical professionals, the Government, pharmaceutical companies and the public.